Added by Pat Williams on February 21, 2013
Muscular Dystrophy Australia (MDA) was recently granted a one-off government payment of $46,000 to allow 120 people with Muscular Dystrophy to attend the CampMDA respite camps and will be doing further fundraising this Sunday with a Fun Run for over 850 people at Albert Park Lake.
Parliamentary Secretary for Disabilities and Carers, Senator Jan McLucas, has been a long time advocate of Muscular Dystrophy Australia and announced last week that the funding was being made available for MDA through the Gillard Government’s Respite Support for Carers of Young People with Severe and Profound Disability program.
“After 88 instances of CampMDA we have finally garnered financial support from the government, however, in this instance it is a single payment and is non-recurrent support,” said Muscular Dystrophy Australia Executive Director, Boris M Struk.
The MDA holds camps for people living with Muscular Dystrophy four times a year, and the most recent camp held at Mount Eliza in mid January 2013 was a great success with 65 camp participants attending.
Since its inception in 1984, MDA has provided more than half a million hours of respite for those in the community affected by Muscular Dystrophy, as well as over 110,000 hours of the support program ‘Futures’ and more than 150,000 hours of student placement representing more than 4,500 tertiary education students supporting CampMDA.
“In total MDA has provided in excess of 1 million hours of care and support for people with Muscular Dystrophy and so we welcome any help we receive from the government, and we hope we are able to receive continued funding,” said Mr Struk.
Holding respite camps not only allows people living with Muscular Dystrophy the opportunity to socialise and share experiences with one another but it gives carers the opportunity to have a short break for the duration of CampMDA.
“MDA is glad to see the government is focusing on improving the lives of those who have a disability through such initiatives as providing $1 billion to deliver the first stage of the National Disability Insurance Scheme (NDIS) and grants such as the one we recently received. We need to make sure the government is delivering the financial support that associations, such as MDA, so vitally need in order to continue to provide help for those people affected by Muscular Dystrophy and other debilitating disorders,” said Mr Struk.
MDA only receives a modest degree of government assistance and in order to help fund its work and programs it holds charity fundraising events, such as this weekend’s ‘Run for Strength’ Fun Run being held at Albert Park Lake on Sunday 24 February 2013.
“With over 850 people registered for the Fun Run on Sunday we are really looking forward to the event as it will be a fantastic day. The event starts at 8.00am, and you can register for only $30 on the day for the 5km walk, 5km run or 10km run,” said Mr Struk.
“People from all walks of life will be taking part, including those who have Muscular Dystrophy, so we encourage everyone to get down here to support it because since the first Fun Run in 2009 the event has raised over $160,000 for Duchenne Muscular Dystrophy research,” said Mr Struk.
For more information on the ‘Run for Strength’ Fun Run being held at Albert Park Lake at 8.00am on Sunday 24 February 2013, please visit the Muscular Dystrophy Australia website: www.mda.org.au or call directly on (03) 9320 9555.